I wrote this blog post from an article that was no longer needed, so I thought I would share it with you 🙂
Fibromyalgia is said to be trigger by an event, and with the death of a close friend 5 years ago, nothing could have prepared me for the pain and upset that it caused and apparently my body couldn’t cope either, and having already being low I picked up glandular fever as well, I won’t go into that story haha.
For the first 2 years the condition seemed quite dormant, only being, occasional tried and only having pain a few bad days a month. But just as I started university, the fibromyalgia started getting worst. I was getting fatigued everyday, sleeping for roughly for 4 to 5 hours a day. Then the pain started getting more intense as the time went past. As I continue with uni I was beginning to miss days because I couldn’t move and was just to tired.
Having to deal with the physical side effects were hard, but fibromyalgia also affected my mind. I would get fibro- fog which is memory issues and would forget everything I needed to do, and often mix up sentences and conversation.
I still have all these problems, but I can gladly say that thanks to a fitness routine and a new eating plan, the pain hasn’t got worst and is beginning decrease, even if it is slowly.
What is Fibromyalgia:
Often I am asked what even is Fibromyalgia? Having fibromyalgia is having nerve pain, neuropathic pain or having a hypersensitive nervous system that causes all of the symptoms you can see below. It is hard to diagnose because the condition can also be confused with so many, such as M.E.
What are symptoms of Fibromyalgia:
Chronic pain, fatigue, bloating, nausea, headaches, feeling anxiety or depressed are just some of the main symptoms people can exhibit with Fibromyalgia, each person is different though.
It is an invisible illnesses:
You are not able to look at someone and know they have Fibromyalgia. It is an invisible illness, just like a lot of other conditions. But that doesn’t mean that it isn’t real! Having an invisible illness is just as important as a disorder you can see. I have found that people can be very judgmental to individuals with this condition.
I have had my own experiences of people being judgemental towards me. For example, I have had people ignore me when I tell them about my condition, and that has also resulted in me losing friends and possible dates. I have even had people undermine my condition.
These are just some of my favourite quotes I have received “It is not like you have cancer, so what are you moaning about” or “Just get over it”. Cool. Thanks… Not!
Fibromyalgia can be managed:
Fantastically there is a way to help manage this condition that helps you live a somewhat normal life. Some clinics help you learn and manage your condition, other forms of management can come as cognitive behavioural therapy and psychotherapy. It can take a long time for the condition to be managed.
We have to take each day at a time:
I have good or bad days, but you never know when this will happen. Pain can strike at any time. My worst time is always after I have done something the day before. The next day I can not move!
But for others, they might be out and about enjoying their day, and boom fibro strikes.
Sometimes this means cancelling plans because you are psychically unable to do it.
I know I am properly not alone when I say this, but changing plans makes me feel unbelievably guilty. So so guilty. Thoughts race through my head, will they think I don’t want to be with them? Will they understand? Will they hate me? These seem irrational, but it totally happens. But if you’re lucky you will have a great group of people that completely understand. I know I do.
Please be careful how you treat people with long-term conditions. For all long term conditions, whether it be anxiety, depression, chronic fatigue, thyroids or more, many people seem to have the same behaviour towards you talking about it. In short, it appears like they are saying, please don’t!
I try not the mention my condition to people unless it is going to impact on them. I have found people do not want to hear about it, or they are fed up with hearing about it, and make this fact very evident. It hurts, we can’t help it and we are trying to improve it, but negative feelings towards us, isn’t going to help. It makes the minority of us, feel awful, useless and upset.
But… in saying that I know I can be sensitive especially when days are bad, which means we also need to understand that everyone is going through their own personal fights and if someone shows us aggression, to what seems is aimed at our condition, might in fact have nothing anything do with us.
Overall long term conditions take a lot out of everyone, the things to do it try to stay positive and one of my favourite sayings, learn to dance in the rain. If you can go through life with this and still be awesome, kind and loving, you are indeed winning at life.
Disclaimer: If you think you are suffering with a long term condition, please go and seek help from a health professional as they will be able to point you to the right cause of action. Also these points might not apply to everyone, but from what I have found via research on both social media and from talking to other people these are the main issues.